to get book



http://www.lulu.com/shop/mick-osullivan/tell-me-if-this-hurts/paperback/product-20626744.html

comments from forums

“I have just joined this forum.  Your story brought tears, I would love to read your book if it is still possible.  We just celebrated my mom’s one month since her transplant. I am hoping that your health is still going great.”

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“It has been a while since you sent me your book. I have read it over and over. Your style of writing and wit is refreshing.  Would you be so kind as to send me the second part?”

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“ I read your post about your book on the PKD Chat support boards.  I had a transplant in 2005.  I would love to read your book.”

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“When I was facing transplant, I searched for just such a book.  Fear of the unknown was the worst thing I faced through the whole thing, and a book giving me some idea of what to expect would have been a good thing.  I also lost my mom to this disease.  I kept a detailed diary about my kidney failure and the transparent process while I was going through it.

Maybe your publishers are right that this book won't appeal to the masses, but perhaps it could be marketed to a medical publisher – one who could put the book into the hands of the nephrologist’s offices, who could then recommend the book to their patients facing transplant.

Congratulations on keeping your kidney to 17 years - and many more!”

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“I read the following post on a PKD board.  I am having a transplant in one week and have been trying to learn all I can.  I would love to get the information you have put together if you don't mind sharing!  Thanks”

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“I would like to read it, I am close to needing to join those on dialysis treatment.   Thanks for the good read so far.”

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“Thank you.  I am looking forward to reading your book.  (My sister) truly enjoyed your style of writing.  I'm sure that I will too.  It is nice to meet you.  Keep in touch.”

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“My sister wants to read your book.  …..  She went through a lot with me.  Feel free to e-mail.  She told me to pass on her e-mail address.”

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“Just finished reading it all.  Incredible.  .... I wish I would have had a chance to read this before or right after my transplant.  In this wonderful age of the Internet, most of the information I got about my kidney disease and transplant information was sugarcoated (most were sponsored by the various drug companies).

I would like your permission to forward your story to fellow kidney patients. One in particular has had two transplants like you have had.  Another friend has a husband that is doing dialysis and is getting all the necessary testing done to be listed.  I could go on and on about people I know that could benefit from your story.  I have contacted the local kidney foundation about a support group for my area....  I'm the type of girl that likes it when things are from one's heart and not through the eyes of someone else.  I love history but not unless it is told through the eyes of someone who lived it.  You have inspired me as well as others I have come in contact through the Internet.  I think we can all do our part to provide others with hope and inspiration.  Whether it is writing a book, starting a foundation, a support group, etc...  Educating others can help us all LIVE with our diseases and treatments.  Your humour and wit really made it an easy read for me.  Thank you once again for your story.  I like the links you've provided at the end.  Feel free to run anything by me.  Please keep in touch.  Finding a fellow kidney patient is like finding a lost friend!  Take care.” 

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“I'm sorry I'm sending you so many e-mails.  Your story is wonderful.  I did not get much done today.  Every time I walked by my computer I had to stop and read more.”

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“I am ready for the second half.  I love your sense of humour.  You have captured the transplant experience and put it into words.  I would have loved to find a book to read like yours before my transplant.  You certainly haven't sugar coated anything.  People seem to think you just stuff the new kidney in and you are cured.”

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“I just finished chapter 2.  It is a gorgeous afternoon and I'm sitting in front of the computer.  I have already laughed and cried.  Some of your story mirrors mine.  I really have to tear myself away and try to get some of my weekend work done.  I truly hope you can get published.  So many people suffering from kidney disease need hope and inspiration.”

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“I read your story on the National Kidney Foundation's Message Boards.  I think you are doing a wonderful thing...  I don't have as much experience in dealing with chronic kidney disease as you do.  I discovered the problem in the spring of 2005 and had my transplant in June 2006.  I would like to read what you have written.  I am guessing, but I might be wrong, you are from Europe?  I live in the United States.  I just recently began contacting people dealing with kidney problems.  It is wonderful to share stories and know you are not alone.  Take care.”

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“Mike, my son had a transplant four years ago.  I would love to read your story.”

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“Finished it last week, at least the first half, and can't wait to get the other half.  Promised to try to post back the first half of this week if I get it together!  Fascinating so far.  Thanks”

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“I am a home haemodialysis patient had just been forwarded your article "Passing Failure" which I read with great interest.  I would be really keen to read your book if he would be happy to e-mail it to me.  Your experiences of studying whilst in kidney failure particularly resonated with me as I went into renal failure aged 14 which was eight years ago, so I went through school on dialysis and am now studying full-time Sociology and Economics at the London School of Economics whilst dialysing at home four times a week.  I had one transplant which failed within a few days so I am not planning to go down that route again for a while!

I think that despite what the publishers say they should be a market for this sort of book because surely it won't only be of interest to dialysis patients?  It could provide a helpful insight to those in the medical profession as far as understanding what a renal patient goes through in trying to have a normal life outside of the hospital routine.  I look forward to reading it. Best wishes.”

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“Hi Michael. Thank you so much for sharing parts of your book with us at the National Kidney Foundation.  It looks like it will be a marvellous book!  Once you get a book published and it is available to the public, let us is know, and we can put it on our website.  In the meantime, good luck, and congrats on your successful kidney transplant!  Please let me know if there is anything else I can do for you.”

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“Thanks for that Michael.  I have started to read Chapter 1 and I experience a lot of déjà vu.  I particularly like the "kidneys in gravy" on the hospital menu, as after my transplant I was offered "steak and kidney pie" I'm starting to think that this may be the hospitals chef’s little joke.  I might check the liver ward next time I visit my local just to see if "liver and onions" is on the menu.  Anyway please send me chapter 2.  Thanks”

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“I have recently read your extract in the BAKPA News and was very inspired by it.  I have had similar experiences myself and reading about others coping with in these debilitating circumstances gives me hope for the future.  At the age of 23 I was put on the transplant list (as a result of kidney failure since the age of 3) and after three attempts at how the fistula formation was formally put on the haemodialysis a year later.  After a year on dialysis my Auntie donated a kidney to me.  I battled for six weeks with severe rejection but eventually left Southmead Hospital with a functioning kidney.  Having my transplant has enabled me to work again and I now work full-time as a Home Care Organiser of the Social Services.  I had just celebrated my 28th birthday and in lived a "normal" life with a transplant for two and a half years.  I've often considered writing about my experiences but, apart from fellow renal patients, was not sure anyone would be interested in reading about them.  However, I feel this is a human interest subject which is affecting more people every year and so may be more popular than I originally thought.  I wish you the best of luck with your book and would be very interested to read it.  Best wishes”

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